SCN8A UK & Ireland

Dedicated to improving the lives of sufferers of SCN8A and their families through support, information and medical research

SCN8A is an extremely rare genetic disorder that causes a wide range of neurodevelopmental disorders, ranging from mild behaviour or movement disorders to severe developmental and cognitive delays. SCN8A is frequently characterised by multiple, frequent, treatment resistant epileptic seizures that can be prolonged.
But we are fighting back....