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Dedicated to improving the lives of children and adults with SCN8A and their families.
Thomas
Thomas has an amazing grandad, Terry, who has provided this wonderful poem to mark SCN8A awareness day. Also check out the song further below.
Today be aware
Remember the day
It's a day of awareness
Of SCN8A
The children are happy
They greet you with smiles,
With the love of their families who go the extra miles,
They are all little warriors
In all that they do
They are brave and show little
Of what they go through,
So please be aware
As you go through your day
Of all our little warriors
With SCN8A.
Thomas’s Story: Team Members
Thomas’s Story: Video
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