Tilly was born in Liverpool in Summer 2010. A beautiful 8lb baby girl to join her excited 2 year old brother. For those first few months, despite having a new baby, everything seemed easy, almost perfect.
Exactly four months old, everything changed. Lying in her cot one morning, Tilly made a loud groan, her face froze in a grimace - jaw clamped, spit bubbling and body rigid. Neither Tilly’s mum or I had witnessed a seizure before and assumed Tilly was choking. No longer taking breaths, she was turning blue around her lips and eyes. While her desperate mum phoned for an ambulance, I dangled her upside down, banged her back, stuck my fingers down her throat to clear her airway (not advised seizure care!). Then, moving out to the street, Tilly let out an almighty gasp and breathed again. The ambulance pulled up, the first of many we would see over the years.
A&E doctors speculated it had likely been a febrile convulsion. We returned briefly to our normal life.